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Recent Activities
37th Annual General Meeting
Thalassemics India successfully conducted its 37th Annual General Meeting on 23rd November 2025 at the Constitution Club, New Delhi.
The meeting was well attended by over 120 patients and parents.
President Mr Deepak Chopra gave the welcome address. A group of 5 thalassemics sang Ganesh Vandana, applauded by all.
Dr. Seema Kapoor, Director CNBC and Delhi State Blood Cell , graced the occasion and shared valuable insights on various government schemes.
Mrs. Shobha Tuli presented the Secretary’s Report, followed by the Financial Report presented by the treasurer Mr. Arun Sehgal.
Viresh, representing TPAG, showcased the key highlights of the accomplished work and invited young thalassemics to participate and share their inputs.
Fourteen patients were given chelation medicines & leukocyte filters under our Helping Hands project.
Santosh & Arjun Dev Taneja Memorial Awards for Excellence 2025
This prestigious award honors individuals who exemplify outstanding dedication, integrity, and excellence in their fields. We are delighted to announce this year’s awardees:
Dr. Ravindra Kumar – Jabalpur, Madhya Pradesh
Kunal Arora – Delhi
Their remarkable contributions truly embody the legacy and values of the Santosh & Arjun Dev Taneja Memorial Awards. We are honored to celebrate their achievements.
Heartfelt gratitude to the Taneja family!
Empowering Thalassemia Warriors 2025
– Scholarships & Support
As part of our commitment to empowering the thalassemia community, 9 scholarships were awarded to thalassemia patients:
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7 recipients received ₹1,00,000 each
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2 recipients received ₹50,000 each
In addition, more than 100 applications were received for the Laptop Support Program, out of which 15 deserving individuals were selected and presented with laptops to aid their academic and professional journeys.
A key highlight was the stirring keynote address delivered by renowned motivational speaker Mr. Shiv Khera, whose uplifting words on resilience, hope, and positive action resonated deeply with everyone present.
With Gratitude we extend our heartfelt thanks to Aster Hospitals Bengaluru, for their unwavering support in making this event possible.
Red Run by Fortis Hospital, Gurugram
Fortis Hospital, Gurugram organised The Red Run – A National Movement to Eliminate Thalassemia by 2035 on 27th April 2025. Thalassemics India is privileged to partner with them by giving the logo support. Bollywood actor, Mr. Jackie Shroff, Brand Ambassador of Thalassemics India was the Chief Guest. 2500 people participated in the event to support the cause.
Celebrations by TSSO at Bhubaneshwar, Orissa
In the run-up to World Thalassemia Day, Thalassemia & Sickle Cell Society in collaboration with Aster CMI Hospital organized an event to raise awareness and to involve patients, parents, health authorities and policy makers having the presence of more than 200 people.
Mrs Shobha Tuli, was invited to speak as Guest of Honour.
Meeting with Chief Minister of Delhi
Thalassemics India & Thalassemia Patients Advocacy Group met the Hon’ble Chief Minister Mrs. Rekha Gupta on 6th May 2025 with the proposal to initiate a comprehensive city-wide campaign to raise awareness and to start a prevention programme.
During the discussion, TPAG outlined its strategy to combat Thalassemia through mass screening, sustained awareness drives, and stronger engagement across state-run and municipal hospitals, educational institutions, and community health centres
Thalassemia Bal Sewa Yojna
On the occasion of World Thalassemia Day, Coal India hosted an event on 8th May at Hotel The Ashok, New Delhi to celebrate the success of Thalassemia Bal Sewa Yojna. This project was started by Coal India in 2017 under the auspices of the Ministry of Health & Family Welfare, GOI by offering financial support to underserved patients with thalassemia and aplastic anemia. More than 700 transplants are done till now under this scheme.
Meeting the Hon’ble President of India
Team of Thalassemics India, Thalassemia Patients Advocacy Group (TPAG), and SGRH had the honor of meeting Smt. Draupadi Murmu, the President of India on 8th May at the Rashtrapati Bhavan.
During the meeting, Ms. Nishtha Madan from TPAG and Ms. Sonam Madan from TI gave a brief about the existing facilities. They also highlighted the significant challenges faced by thalassemia patients and the need for comprehensive strategies to address these issues.
In addition, Mr. Deepak Chopra and Ms. Shobha Tuli, requested to start Thalassemia Elimination program on a mission mode.
Fun & Frolic event held at Indraprastha Apollo Hospital
World Thalassemia Day celebrations by Apollo Hospital, New Delhi on May 8 in collaboration with Thalassemics India & Foundation against Thalassemia: -
Indraprastha Apollo Hospital organized a fun-filled event from 4 to 6 pm dedicated to thalassemia major patients.
The hospital’s auditorium was filled with joy as our young patients showcased their talents through melodious songs and delightful dance performances. Children enjoyed the magic show which left everyone in awe. The atmosphere was truly uplifting, filled with laughter and happiness, which was complemented by high- tea.
Thalassemics India, and Foundation against Thalassemia got recognition awards from the hospital authorities.
The hospital was illuminated in red showcasing their commitment to thalassemia awareness.
VOH initiative of celebrating World Thalassemia Day on May 9th in association with Sebia:
A webinar having the august presence of Prof. Atul Kotwal from NHSRC, medical and community experts had the opportunity to discuss important issues concerning adult patients care, screening and prevention strategies. The speakers were Shobha Tuli, Dr. Anupam Sachdev, Dr. Seema Kapoor, Dr. Ritika Sud, Dr. Sarika Singh & Dr. Jyoti Kotwal.
This webinar not only aimed to raise awareness but also serves as another platform to foster regular physical and virtual meetings to further the discussions after expanding our network of experts in this field.
Thalassemia Awareness Talk at Pt. Deendayal Upadhyaya National Institute for Persons with Physical Disabilities
We thank Ministry of Social Justice and Empowerment, Government of India & PDUNIPPD for inviting Thalassemics India to give a talk on thalassemia.
Dr. V.K. Khanna, Vice- President of TI, gave a presentation to the students enlightening them about its prevalence, treatment and prevention followed by questions/ answers.
Thanks to PDUNIPPD for their efforts in promoting awareness and education about Thalassemia.This webinar not only aimed to raise awareness but also serves as another platform to foster regular physical and virtual meetings to further the discussions after expanding our network of experts in this field.
World Thalassemia Day, 2024
Thalassemics India in association with Sir Gangaram Hospital celebrated World Thalassemia Day’ 2024 by illuminating India Gate with RED colour. It is the first time ever that a monument of National Fame stood in support of a cause. This was truly an overwhelming moment for all of us! We have no words good enough to express our feelings and gratitude to the Government of India.
Helping Hands
Under “Helping Hands” project, Thalassemics India extended support to some needy patients with Thalassemia major by giving Desferal, oral chelators & blood filters worth Rs 9,23,918/-. Desferal Injections - 209 boxesDesirox 500 Mg- 202 boxes Kelfer 500 Mg- 186 boxes Defrijet fct 360Mg- 162 boxesBio R (DU) blood filter- 91 pcs Defrijet 500 Mg-39 boxesImugard/ Bio R ( SU) blood filter- 41 pcs Desirox 250 Mg-06 boxes
Historic event to honour, felicitate, and reward supporters, caregivers, and achievers in the 35-year journey of Thalassemics India
Thalassemics India, the first NGO for Thalassemia established in 1987 in India, celebrated its 35th year anniversary on 25th March,2023 at Hotel Le Meridian New Delhi. The event witnessed a historic journey of Thalassemics India gracing the theme “LAKSH” highlighting the mission of “Sampoorn Chikitsa” and “ Thalassemia Mukt Bharat”.
Transforming Care & Cure for Thalassemia
Transforming Care & Cure for Thalassemia by Leveraging the Potential of Genomics & Bone Marrow Transplant - a CME was held on May 10th in lieu of International Thalassemia Day by Apollo Hospitals in association with Thalassemics India at India Habitat Centre, Delhi.
The meeting was focused on care and cure of Thalassemia Patients. There were panel discussions on Bone Marrow Transplant and Gene Therapy.
Mrs. Rupinder Brar - Addl Secretary, Coal Ministry Government of India and Sh Harsh Mangla Director NHM Government of India were the Guests of Honour.
This was well attended by dignitaries like Mrs. Vinita Srivastava, Advisor Health, Ministry of Tribal Affairs & senior doctors from a number of hospitals.
35-year journey of Thalassemics India
Thalassemics India, the first NGO for Thalassemia established in 1987 in India, celebrated its 35th year anniversary on 25th March,2023 at Hotel Le Meridian New Delhi. The event witnessed a historic journey of Thalassemics India gracing the theme “LAKSH” highlighting the mission of “Sampoorn Chikitsa” and “ Thalassemia Mukt Bharat”.
Launch of the 3rd Phase of "Thalassemia Bal Sewa Yojna"
The Coal India CSR- funded Hemotopoietic Stem Cell Transplant (HSCT) programme is a unique initiative aimed at providing a one-time cure opportunity to underprivileged patients with thalassemia and aplastic anaemia having a matched sibling donor and matched unrelated donor, but do not have the financial resources to cover the cost of bone marrow transplant.
The programme was started in 2017 under the name of “Thalassemia Bal Sewa Yojna”. Till now, 356 transplants are done across 10 empanelled hospitals in India during the two phases. The 3rd phase of the programme was formally inaugurated on International Thalassemia Day, 8th May at the MoHFW, Nirman Bhawan by the Hon’ble Union Minister of State, Dr Bharati Pravin Pawar to further improve the health outcomes of underprivileged populations.
​This year Thalassemics India marks its 35th Annual General Meeting on 12th February 2023 at the Constitution Club, New Delhi.
The meeting started with a welcome address by Sh. Deepak Chopra, President of Thalassemics India.
The meeting then progressed to sharing of financial records for the year 2021-2022 by Mr. Arun Sehgal, Treasurer of Thalassemics India.
Ms. Shobha Tuli, Secretary of Thalassemics India imparted the Secretary's report to the members, which includes the projects, activities and detailed summary of the work done throughout the year.
During the meeting, Mr. Deepak Chopra appreciated a few thalassemia patients - Pooja Gupta, Akhilesh Kumar, Rishabh Lamba, Swati Tuteja & Ssonam Maddan for their progressive work.
Chelation medicines & equipment were distributed to 2 hospitals and to some needy patients with Thalassemia.
The meeting ended with a vote of thanks by Ms. Shobha Tuli followed by lunch.
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Webinar on Prevention of Thalassemia- Challenges & Achievements
Webinar on Prevention of Thalassemia- Challenges & Achievements was held on 26th February,2022.
International Thalassemia Day
International Thalassemia Day celebrated on 7th May,2022 with the theme of ''Be Aware Share Care'' at Hotel Le Meridien.
Webinar on Bone Marrow Transplant
A Webinar on "Bone Marrow Transplant'' was held on 13th November,2022. The webinar was held under the auspices of the Ministry of Health & Family Welfare, Government of India.
Webinar on Luspatercept in TDT & NTDT
A webinar was held on 11th December,2022 on "Luspatercept in TDT and NTDT” organised by Thalassemics India and Thalassemia Patients Advocacy Group (a patient wing of T.I.).
Inauguration of Blood Collection Vans & NAT Screening Lab on 20th March 2021 at IRCS, National Headquarter, New Delhi
The former Union Health Minister, Dr. Harsh Vardhan inaugurated 3 Blood Collection vehicles - 2 mobile buses funded by DXC Technology and 1 bus funded by LIC Golden Jubilee Foundation. During this Inauguration ceremony, Thalassemics India formally handed over the three vehicles to IRCS Blood Bank.
The Hon’ble Minister also inaugurated the NAT Screening LAB which is an initiative of Thalassemia Patient Advocacy Group (TPAG), the patient wing of Thalassemics India.
Webinar on “Challenges in Day-to-Day Management of Thalassemia” on 23rd May,2021
In continuation with the series of webinars, Thalassemics India & Thalassemia Patient Advocacy Group (TPAG) organised another webinar on ‘’Challenges in Day-to-Day Management of Thalassemia’’ on 23rd May,2021.
