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Recent Activities
World Thalassemia Day, 2024
Thalassemics India in association with Sir Gangaram Hospital celebrated World Thalassemia Day’ 2024 by illuminating India Gate with RED colour. It is the first time ever that a monument of National Fame stood in support of a cause. This was truly an overwhelming moment for all of us! We have no words good enough to express our feelings and gratitude to the Government of India.
Helping Hands
Under “Helping Hands” project, Thalassemics India extended support to some needy patients with Thalassemia major by giving Desferal, oral chelators & blood filters worth Rs 9,23,918/-. Desferal Injections - 209 boxesDesirox 500 Mg- 202 boxes Kelfer 500 Mg- 186 boxesDefrijet fct 360Mg- 162 boxesBio R (DU) blood filter- 91 pcs Defrijet 500 Mg-39 boxesImugard/ Bio R ( SU) blood filter- 41 pcsDesirox 250 Mg-06 boxes
Historic event to honour, felicitate, and reward supporters, caregivers, and achievers in the 35-year journey of Thalassemics India
Thalassemics India, the first NGO for Thalassemia established in 1987 in India, celebrated its 35th year anniversary on 25th March,2023 at Hotel Le Meridian New Delhi. The event witnessed a historic journey of Thalassemics India gracing the theme “LAKSH” highlighting the mission of “Sampoorn Chikitsa” and “ Thalassemia Mukt Bharat”.
Transforming Care & Cure for Thalassemia
Transforming Care & Cure for Thalassemia by Leveraging the Potential of Genomics & Bone Marrow Transplant - a CME was held on May 10th in lieu of International Thalassemia Day by Apollo Hospitals in association with Thalassemics India at India Habitat Centre, Delhi.
The meeting was focused on care and cure of Thalassemia Patients. There were panel discussions on Bone Marrow Transplant and Gene Therapy.
Mrs. Rupinder Brar - Addl Secretary, Coal Ministry Government of India and Sh Harsh Mangla Director NHM Government of India were the Guests of Honour.
This was well attended by dignitaries like Mrs. Vinita Srivastava, Advisor Health, Ministry of Tribal Affairs & senior doctors from a number of hospitals.
35-year journey of Thalassemics India
Thalassemics India, the first NGO for Thalassemia established in 1987 in India, celebrated its 35th year anniversary on 25th March,2023 at Hotel Le Meridian New Delhi. The event witnessed a historic journey of Thalassemics India gracing the theme “LAKSH” highlighting the mission of “Sampoorn Chikitsa” and “ Thalassemia Mukt Bharat”.
Launch of the 3rd Phase of "Thalassemia Bal Sewa Yojna"
The Coal India CSR- funded Hemotopoietic Stem Cell Transplant (HSCT) programme is a unique initiative aimed at providing a one-time cure opportunity to underprivileged patients with thalassemia and aplastic anaemia having a matched sibling donor and matched unrelated donor, but do not have the financial resources to cover the cost of bone marrow transplant.
The programme was started in 2017 under the name of “Thalassemia Bal Sewa Yojna”. Till now, 356 transplants are done across 10 empanelled hospitals in India during the two phases. The 3rd phase of the programme was formally inaugurated on International Thalassemia Day, 8th May at the MoHFW, Nirman Bhawan by the Hon’ble Union Minister of State, Dr Bharati Pravin Pawar to further improve the health outcomes of underprivileged populations.
​This year Thalassemics India marks its 35th Annual General Meeting on 12th February 2023 at the Constitution Club, New Delhi.
The meeting started with a welcome address by Sh. Deepak Chopra, President of Thalassemics India.
The meeting then progressed to sharing of financial records for the year 2021-2022 by Mr. Arun Sehgal, Treasurer of Thalassemics India.
Ms. Shobha Tuli, Secretary of Thalassemics India imparted the Secretary's report to the members, which includes the projects, activities and detailed summary of the work done throughout the year.
During the meeting, Mr. Deepak Chopra appreciated a few thalassemia patients - Pooja Gupta, Akhilesh Kumar, Rishabh Lamba, Swati Tuteja & Ssonam Maddan for their progressive work.
Chelation medicines & equipment were distributed to 2 hospitals and to some needy patients with Thalassemia.
The meeting ended with a vote of thanks by Ms. Shobha Tuli followed by lunch.
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Webinar on Prevention of Thalassemia- Challenges & Achievements
Webinar on Prevention of Thalassemia- Challenges & Achievements was held on 26th February,2022.
International Thalassemia Day
International Thalassemia Day celebrated on 7th May,2022 with the theme of ''Be Aware Share Care'' at Hotel Le Meridien.
Webinar on Bone Marrow Transplant
A Webinar on "Bone Marrow Transplant'' was held on 13th November,2022. The webinar was held under the auspices of the Ministry of Health & Family Welfare, Government of India.
Webinar on Luspatercept in TDT & NTDT
A webinar was held on 11th December,2022 on "Luspatercept in TDT and NTDT” organised by Thalassemics India and Thalassemia Patients Advocacy Group (a patient wing of T.I.).
Inauguration of Blood Collection Vans & NAT Screening Lab on 20th March 2021 at IRCS, National Headquarter, New Delhi
The former Union Health Minister, Dr. Harsh Vardhan inaugurated 3 Blood Collection vehicles - 2 mobile buses funded by DXC Technology and 1 bus funded by LIC Golden Jubilee Foundation. During this Inauguration ceremony, Thalassemics India formally handed over the three vehicles to IRCS Blood Bank.
The Hon’ble Minister also inaugurated the NAT Screening LAB which is an initiative of Thalassemia Patient Advocacy Group (TPAG), the patient wing of Thalassemics India.
Webinar on “Challenges in Day-to-Day Management of Thalassemia” on 23rd May,2021
In continuation with the series of webinars, Thalassemics India & Thalassemia Patient Advocacy Group (TPAG) organised another webinar on ‘’Challenges in Day-to-Day Management of Thalassemia’’ on 23rd May,2021.
