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Recent Activities

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AGM Creative for 2023_1.JPG

This year Thalassemics India marks its 35th Annual General Meeting on 12th February 2023 at the Constitution Club, New Delhi. 

The meeting started with a welcome address by Sh. Deepak Chopra, President of Thalassemics India. 
The meeting then progressed to sharing of financial records for the year 2021-2022 by Mr. Arun Sehgal, Treasurer of Thalassemics India.
Ms. Shobha Tuli, Secretary of Thalassemics India imparted the Secretary's report to the members, which  includes the projects, activities and detailed summary of the work done throughout the year. 
During the meeting, Mr. Deepak Chopra appreciated a few thalassemia patients - Pooja Gupta, Akhilesh Kumar, Rishabh Lamba, Swati Tuteja & Ssonam Maddan for their progressive work. 
Chelation medicines & equipment were distributed to 2 hospitals and to some needy patients with Thalassemia. 
The meeting ended with a vote of thanks by Ms. Shobha Tuli followed by lunch.

Secretary's Report  2022

Inauguration of Blood Collection Vans & NAT Screening Lab on 20th March 2021 at IRCS, National Headquarter, New Delhi

The former Union Health Minister, Dr. Harsh Vardhan inaugurated 3 Blood Collection vehicles - 2 mobile buses funded by DXC Technology and 1 bus funded by LIC Golden Jubilee Foundation. During this Inauguration ceremony, Thalassemics India formally handed over the three vehicles to IRCS Blood Bank.

The Hon’ble Minister also inaugurated the NAT Screening LAB which is an initiative of Thalassemia Patient Advocacy Group (TPAG), the patient wing of Thalassemics India.

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Webinar on “Challenges in Day-to-Day Management of Thalassemia” on 23rd May,2021

In continuation with the series of webinars, Thalassemics India & Thalassemia Patient Advocacy Group (TPAG) organised another webinar on ‘’Challenges in Day-to-Day Management of Thalassemia’’ on 23rd May,2021.

Webinar on Prevention of Thalassemia- Challenges & Achievements

Webinar on Prevention of Thalassemia- Challenges & Achievements was held on 26th February,2022.

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International Thalassemia Day 

International Thalassemia Day celebrated on 7th May,2022 with the theme of ''Be Aware Share Care''  at Hotel Le Meridien. 

Webinar on Bone Marrow Transplant

A Webinar on "Bone Marrow Transplant''  was held on 13th November,2022. The webinar was held under the auspices of the Ministry of Health & Family Welfare, Government of India.

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Webinar on Luspatercept in TDT & NTDT

A webinar was held on 11th December,2022 on "Luspatercept in TDT and NTDT” organised by Thalassemics India and Thalassemia Patients Advocacy Group (a patient wing of T.I.). 

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