World Thalassemia Day-8th May:


On the occasion of ''World Thalassemia Day'',Thalassemics India did a series of significant activities on 8th and 9th May in New Delhi.

On 8th May, a seminar on "The Basics of Thalassemia Management , Care and Prevention" was was held at India Habitat Centre from 10 am to 4 pm with the expert haematologist group under the banner of the Ministry of Health & Family Welfare (MoHFW), Government of India.

The programme started with the welcome address by Mrs. Shobha Tuli, Secretary, Thalassemics India.

Dr. Roshan Colah gave a powerful talk on the Road to making India Thalassemia free by 2025''.

A Panel Discussion on :''Safe Blood Transfusion for Thalassemics: Current Status and Way Forward''was moderated by Dr. Amita Mahajan and the panelists were : Ms. Vinita Srivastava, Dr. Vanshree Singh, Dr.S.Sudha, Dr. Satyam Arora and Dr. Rahul Bhargava.

Dr. Tulika Seth threw more light on the new iron chelator drug- ''Oleptiss''.

''Optimizing Chelation Therapy in Thalassemia''was very well put up in another Panel discussion moderated by Dr. V. K. Khanna with the expert panelists- Dr. Sunil Gomber, Dr. Anil Khatri, Dr. Praveen Sobti and Dr. Rajiv Bansal.

Mr. Deepak Chopra, President of Thalassemics India addressed the audience by giving an overview of the 30 years journey of Thalassemics India.

He also introduced and announced the Bollywood star Mr Jackie Shroff as the Brand Ambassador of Thalassemics India, supporting the mission of Thalassemia Awareness and Prevention.

Programme was officially inaugurated by the Hon'ble Chief Guest Sh. Rajendra Pal Gautam, Minister of Social Welfare, Delhi Govt.,Dr. Kirti Bhushan, DGHS, Delhi Govt. & Ms. Vinita Srivastava, National Senior Consultant & Co-ordinator, Blood Cell- NHM, MoHFW, Govt. of India were the Guests of Honour.

During the inauguration function, the Hon'ble Minister unveiled the two posters on Thalassemia Awareness and Prevention Campaign, with Jackie Shroff The Patient Advocacy Group's (TPAG) Newsletter.

Some of the doctors who have contributed zealously in the field of thalassemia were felicitated for their dedication by Thalassemics India. The doctors received a token of appreciation from the Chief Guest.

Anubha Taneja, Member Secretary, TPAG, other group members and fellow thalassemics, along with our ambassador Jackie Shroff, took the pledge for ''Thalassemia Free India by 2025.''

A brief press conference was held to introduce our Ambassador Mr Jackie Shroff.

A special address was given on Disability by the Deputy Chief Commissioner for Persons with Disabilities, Govt. of India - Sh. Sanjay Kant Prasad.

There was a special address on the ''Indian Case Scenario: Management, Insurance & and various other significant issues by Ms. Sangeeta Chatoo, Associate Professor Public Health and Society Research Group, Department of Health Sciences, University of York.

The programme attended by more than 300 participants was beautifully conducted by Ms. Nehal Dhingra, TPAG member

The function concluded with a vote of thanks by Mrs. Shobha Tuli, Secretary, Thalassemics India.

9th May:

Thalassemics India team members: Mrs. Shobha Tuli, Mrs. Gagandeep Singh, Mrs Rita Jain, Mrs. Rashmi Kalra, Ms. Sonam Madaan and Ms.Swati Tuteja visited Deen Dayal Upadhayay Hospital and Sir Gangaram Hospital with our Brand Ambassador Jackie Shroff. Children felt ecstatic to meet Mr Shroff and receive back gifts from the Bollywood actor.

A very engaging press-conference was held at the board room of Sir Gangaram Hospital, New Delhi in the presence of Dr. D.S. Rana, Chairman, Board of Management, Dr. V. K. Khanna, Chairman, Child Health Institute ,Dr. S.P. Byotra, Vice-Chairman Board of Management, and Mr Jackie Shroff. They addressed the press to take the message of thalassemia awareness and prevention forward and responded to their queries on Thalassemia.

A Live programme was telecast by Delhi DoorDarshan on Thalassemia, participated by Ms. Vinita Srivastava, Shobha Tuli and Dr. Rahul Bhargava.

We all, from Thalassemics India, would like to thank the MoHFW, Govt. of India, Ministry of Social Welfare, Delhi Govt., Directorate Government Health Services, Sir Ganga Ram hospital, DDU hospital, Mr Jackie Shroff and all others who contributed to the success of this programme.